Case study

Case study

Case study

Case study

Transforming a Vision into an Award-Winning Research Registry for a Rare Disease

Case study

Transforming a Vision into an Award-Winning Research Registry for a Rare Disease

Client

Ceribell
INTO-HLH

industry

Diagnostics
Life Sciences

Services

Design System
Brand Identity
UX & UI Design
Veeva Submissions

year

2023

Introduction

Introduction

Introduction

Hemophagocytic Lymphohistiocytosis (HLH) is a rare and serious condition that can affect people of all ages. 

Hemophagocytic Lymphohistiocytosis (HLH) is a rare and serious condition that can affect people of all ages. 

Hemophagocytic Lymphohistiocytosis (HLH) is a rare and serious condition that can affect people of all ages. 

To better understand and treat this disorder, Cincinnati Children's Hospital Medical Center, Texas Children's Hospital, and Sobi Pharmaceuticals have joined forces to create INTO-HLH, a supportive online community and registry. This valuable resource offers essential information and support to patients, families, and healthcare professionals, while also gathering crucial data that will help improve the lives of those affected by HLH.

Our goal

Our goal

Our goal

Motionstrand aimed to create an engaging, user-friendly website that serves as a central resource for the HLH community, while also reflecting the warmth and resilience of those it serves.

Brand Identity

Brand Identity

Brand Identity

A focus on community & hope

We worked closely with INTO-HLH stakeholders to develop a brand identity that resonates with patients, families, and healthcare professionals alike. Community-based imagery and the call to action "Join the Fight" emphasize the power of collective action and the shared goal of improving outcomes for those living with HLH.

UX & UI Design

UX & UI Design

UX & UI Design

UX & UI Design

UX & UI Design

A user-friendly & informative hub

The design of the INTO-HLH website was centered around the needs of the HLH community. We created a platform that is not only visually appealing but also intuitive and easy to navigate. The website features community-based imagery to foster a sense of belonging and optimism. We ensured that visitors could easily find information, join the registry, or make donations. Our design choices were driven by the goal of making every visitor feel like they are contributing to the fight against HLH.

Veeva Submissions

Veeva Submissions

Veeva Submissions

Veeva Submissions

Veeva Submissions

Seamless expertise for a successful launch

Our Veeva Vault-trained team ensured a smooth and efficient submission process, adhering to best practices and addressing any necessary adjustments along the way. This allowed INTO-HLH to launch their platform confidently and without delay.

Results

Results

Results

Results

Results

The transformation of the INTO-HLH idea into an award-winning research registry website has significantly empowered the HLH community.  

The transformation of the INTO-HLH idea into an award-winning research registry website has significantly empowered the HLH community.  

Innovative designs drive Ceribell's success in rural hospitals, enhancing care efficiency & securing FDA approval. 

With a centralized platform providing vital information and resources, consistent and appealing branding fostering a sense of community, and a user-friendly design facilitating engagement, the site has successfully encouraged participation and donations. Our seamless Veeva Vault submissions ensured regulatory compliance without delays, allowing the INTO-HLH team to concentrate on their mission. Guided by Motionstrand's expertise, the collaborative efforts of all stakeholders have exceeded initial goals, advancing support and research for HLH in meaningful ways.

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© 2025 Motionstrand.

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